Dr. Kristi Hellenbrand, author of newly released Let Me Tell You a Secret...She Makes It -a Lyme survival story- and Global Lyme Alliance Ambassador
EARLY SIGNS OF INFECTION
-what to look out for-
"SUMMER" FLU - Often the first sign of infection: fever with body aches and without a cough or lung presentation *any time of year
BULLSEYE RASH - definitive Lyme, only present in 30% of infected.
OTHER COMMON RASHES - commonly resembles a spider bite pustule. With/without redness and with INTENSE ITCH (most do not remember being bit or have a rash)
CRIPPLING FATIGUE - unexplained and severe, with inability to work/play
NEW CARDIAC SYMPTOMS - (low blood pressure, dizziness, high resting heart rate, POTS, etc) unexplained by cardiologist workup
SWOLLEN LYMPH NODES
*If caught quickly, within days of infection, prognosis is excellent.
CHRONIC SIGNS OF INFECTION
-what to look for-
SUDDEN WEAKNESS OF ARMS AND/OR LEGS - newly developed inability to walk
ATAXIA - severe balance issue
MIGRATING NUMBNESS /SHOOTING PAIN - usually in arms or legs, unresponsive to chiropractic or medical treatment
SEVERE LIGHT SENSITIVITY
SEVERE SOUND SENSITIVITY
MIGRAINES - unrelieved by OTC meds, with no known cause
EYE PAIN (optic neuritis) - with no known cause
VISION CHANGES - sudden and unexplained otherwise
MIGRATING JOINT PAIN AND SWELLING- unexplained (without injury) and usually in large joints such as knees and elbows.
TREMORS AND/OR TICS
ALZHEIMER-LIKE COGNITIVE DECLINE
HEART BLOCK/ARRHYTHMIA - known as Lyme Carditis
STROKE symptoms
GASTROINTESTINAL SYMPTOMS - severe and sudden, without known cause
FAILURE TO THRIVE - both emotionally and physically
*If diagnosed late, the prognosis is poor and requires care with a Lyme Literate Medical Doctor (LLMD)​
WHERE IS LYME?
No longer limited to the United States Northeast
Heavily in the Midwest, FL, and both Western and Eastern seaboard
Documented cases in every contiguous state
Most commonly found in wooded, tall grassy areas and grassy beaches
Transported in on birds, deer, rodents
Commonly found on livestock and family pets
A 2018 study by that Bay Area Lyme Foundation found that 24 states contain counties with newly documented Ixodes scapularis (deer tick) or Ixodes pacificus (Western black-legged tick).​
PREVENTION
-what to do and use-
DEET SPRAY on equipment such as boots, shoes, gloves, hats
DEET-free spray such as REPEL LEMON EUCALYPTUS studied and endorsed by CDC - use on skin
WONDERCIDE - all natural product safe for humans and dogs. Active ingredient: cedar oil
WEAR SOCKS OVER PANTS when in the woods or tall grasses
WEAR CLOTHING IMPREGNATED WITH PYRETHRIN OR PERMETHRIN, found on Amazon
WEAR WHITE CLOTHING for easy visibility of ticks
REGULAR TICK CHECKS - of self, children and pets
TREATMENT 101
Please visit the Treatment tab on the Home page for more detailed information
Early stage: between ten days and two months of doxycycline or amoxicillin
Find an Urgent Care/General Practitioner or Dermatologist near you that treats a tick bite appropriately.
ask for minimum of 10 days of antibiotic
a single dose doxycycline (200mg) has never been shown to prevent Lyme Disease in 100% of patients. No current research supports this treatment.
Late stage: requires a Lyme Literate MD (LLMD) because this requires individualized treatments.
Rule out other illnesses such as Guillain Barre Syndrome, Brain/spinal Tumors, etc.​
Chronic Lyme often presents similar to MS, Fibromyalgia, Migraine Disease, IBS, MCAS, CFS/ME
Find a LLMD with the help of Global Lyme Alliance , CLICK BELOW
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TESTING + PREVENTION
ELISA & WESTERN BLOT:
are highly specific tests but are not very sensitive and miss upwards of 70% of cases.
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PCR TESTING (IgG/IgM): more sensitive, used freely in Europe though hard to find in the United States. They also find common coinfections transmitted by ticks.
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LABORATORIES INCLUDE:
VIBRANT WELLNESS LAB - CLICK LINK BELOW
IGENIX - CLICK LINK BELOW
JOIN US + GET SUPPORT
Women's Lyme Awareness Group - looking to host quarterly Eventbrite meetings (contact us if interested!)
PTC Lyme Connection on Facebook